Thursday 19 December 2013

Well hello there... T_T .... First a bit of background.

Hi guys,

This blog will chart my journey through the infernal waters that is Topical Steroid Withdrawal (TSW from hence-forth). One day about 3 years ago, I woke up with a very itchy eye bag, I kept itching and it turned red and angry and wouldn't settle down, I looked like I had gone through a boxing match, twas not a good look. I skipped all the way to my doctors and was diagnosed with atopic dermatitis and prescribed hydrocortisone 1% (A steroid cream) to use twice daily until it cleared up for about a week. This is where it all began...

After a week the small rash had disappeared, I stopped using the Hydrocortisone cream thinking that I was cured, but alas, only a day later, the rash was back, so I just treated it with Hydrocortisone cream again and started a vicious cycle that would last about six months.

After six months, my super magic cream stopped working and I started reading about how using topical steroids could thin the skin. This got me worried as I had been using it on delicate skin around my eye which is already pretty thin. I then sought to find a none steroidal solution and went to a chinese doctor to find a magical cure to my itchy red eyebag.

The chinese doctor gave me some herbal pills and this small tub of herbal cream, it was a brown coloured cream and he assured me that the cream contained no steroids, I used the herbal cream and the first night i used it, it cleared my itchy sore eyebag. I continued to use this "herbal" cream from then on until January 2013.

In January 2013, I lost my brother... I had rushed back to my family home without bringing any creams with me, I didn't care if I had an itchy eye bag, I guess at that point I just wanted to be there for my family. And then I had a major flare, except it wasn't just an eyebag that got a bit itchy, both my preorbital areas and my cheeks turned a flaming red. It was scary. I went home to get my "herbal cream" and i applied it to now ever increasing areas of my face.

I knew something was not quite right but it was only in June that I would discover what was happening to me, in June my "herbal" cream stopped working too and I scoured the internet to find what was going on, why my eczema was getting out of control and spreading! That is when I came across ITSAN (International Topical Steroid Addiction Network) and Steroid Induced Rosacea, looking at those pictures, They looked just like me and I sort off deduced that my "herbal" cream must have had some sort of steroids in it (I tried to go back to the chinese doctor, 'cept he had disappeared).

I knew I had to stop using steroids but I also had to go on an important trip abroad so I needed to clear my face fast and my doctor prescribed me protopic (tacrolimus ointment) 0.1%, an immunosuppressant that is prescribed to deal with eczema when you refuse to use steroids. It worked, sort of, my skin stopped flaring but I did have a bit of hyper-pigmentation which was easily covered using make up.

So lets jump to November, I'm back from my important trip abroad and I continued to use the protopic ointment. I knew I should stop but I was too chicken to do that after seeing what withdrawal did to me in June. But then God made the decision for me because protopic stopped working for me sometime in mid November. I went to doctors and they tried to make me use steroids but I refused.

On 22nd of November 2013 I stopped using all the topical steroids. TSW, come at me bro! >:-|

2 comments:

  1. Hi and so sorry you fell into the roid maze that docs so freely cast us into. Sorry also about the loss of your brother, it must be very difficult and I really feel for you enduring that grief along with tsw.

    It is also a common occurrence to meet people who have used seemingly harmless protopic and Chinese creams only to find out they are nothing of the sort. It is a blessing they quit working though because my skin flared at age 13 and 23 so I was already in addiction but just thought it was a bad eczema flare and continued to use until age 55 when it did quit working.

    You are on your way to healing and the rest of your life free of dependence on ts. Hang in there and watch how your pics later on will tell the whole story. :) xx

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    1. Thank you so much! I'm so thankful and grateful for all the time you have spent raising awareness about this issue and supporting those who are going this. I'm scared, but I'm also prepared. :) x

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